Tuesday, January 30, 2007


It's another beautiful moring in blogger land! The picture of my very happy dog Kiwi shows how I am feeling as I blog, because I went to UCSF for my second opinion yesterday. I had many questions answered about my chemo regimine and am very happy about the new change. It is recommended that I switch from using Folfox 4 for 6 months to Folfox 6 for 4 months. That means that I only have 7 more cycles of treatment to go, and I'll be done with it by May if all goes well! The difference from Folfox 4 to folfox 6 is that I only have to go to treatment every other week for two days instead of three, I get less 5-FU each cycle but a little more Oxaliplatin, and since it's for 8 cycles instead of the 12, it gives less toxicity to the body overall. The data shows no difference in outcome, so less is better. Also, it is recommended I do not take Avastin because of all the unknown and unanswered questions that Avastin carries for stage III cancer. Finally, the doctor also recommended that once I am through with treatement, I get a CT scan every 3 months for the next 3 years due to the 25% risk factor of it re-occuring. I will have my scans done at UCSF. It's amazing to me how each time I have been to UCSF, my course of treatment has changed. I can't stress to you how important it is to get a second opinion and even a third if need be. When you are talking about a life, it is well worth the time and effort. It's pretty scary not knowing what to do when each decision is so important and life threating, but knowing that God is with me, guiding me and showing me each step or path to take is what keeps me at peace. I know God is in control and He will continue to watch over my family and me each and every day.
John 16:33 These things I have spoken to you, that in Me you may have peace. In the world you have tribulation, but take courage, I have overcome the world.

Wednesday, January 24, 2007

Good morning blogger buddies. Well, I'm into my first of 12 chemo series treatments. Yesterday I was there from 9:30-3:45 and today it should be only about 3 hours. Tomorrow will be about 1/2 hr to remove the buddy pack until the next series in two weeks. Yesterday took a little longer than expected because my port in my chest would not work right. It took just under 2 hours to get it working. It would allow drugs into the body but not allow for removal of blood. It's a two-way port and only one way was working. Apparently, sometimes the body produces a film inside that blocks the exit of fluid from the port. The nurse gave me a med that disolved it enough to allow full usage of the port...for the day. It will probaby happen again, but at least I was able to start the series. I didn't have too much trouble after that. Of the three types of chemo I received, I had a slight reaction to the Oxaliplatin. It sped up my heart rate from 60 to about 80 within the first hour. So next time I get it I will be given more bennidrill (I had 12.5mg instead of the usual 25mg) Today I will have Leuccvorin and 5FU bolus or booster like yesterday but without the Oxaliplatin. I am carring around my buddy pack again for 3 days each series. I Think over all I did pretty well, except my dear husband Casey gave me a bad head cold that came out the day before treatment. I had to take Sudafed during treatment to breath. They weren't concerned about me being sick at the start because it's not an infection...yet. I hope it doesn't go to my chest. As for nausea, I haven't experienced that yet and hopefully I won't. They gave me an anti-nausea drip, steriod drip, (are you jealous Barry?) and a few othet drips to help boost up the body. I did not start the Avastin drug yet because I was not 4 weeks out from surgery, whick is a must. I will start that on the next series in two weeks. In the meantime, I will see a doctor at UCSF for a second opinon on the drug regimine. I thought it was interesting that of the 6 patients in the room, 4 to 5 of us were dealing with colorectal cancer. You can tell by the buddy packs around the room, and the nurse mentioned a few. I hope you all are getting your colonoscopy !! Thank you all for your continual prayers and encouragement. Sometimes I get comments about being so positive and srtong, and that comes from not only knowing that God is with me every step of the way, but also from all of you who are praying for me, and encouraging me in so many ways. As I said before, I am truly blessed by each one of you in my life. Thank you
Mark 11:23,24
Truly I say to you, whoever says to the mountain, Be taken up and cast into the sea, and does not doubt in his heart, but believes that what he says is going to happen, it shall be granted him. Therefore, I say to you, all things for which you pray and ask, believe that you have received them, and they shall be granted to you.

Wednesday, January 17, 2007

HI everyone and happy January. I am doing really well these days. I have been out walking almost every day up to 5 miles (in two outings). I have my energy back and am now ready for chemo. Monday I talked with my Oncologist and he wants me to take Folfox 4 with Avastin for the next 6 months every two weeks. It will be administered over 3 days, the first day for 5 hours, the next day for 3, and the third day just for about an hour or so to remove the bed buddy pack. Yes, I will have my bed buddy back for two nights every two weeks. I can't say I've missed her but we'll get reaquainted. The folfox treatment is a mixture of 3 different drugs. 5-FU (what I previously had in the pack), leucovorin (folinic acid)and oxaliplatin. This is standard treatment for stage III cancer. Avastin is a drug that is currently used and approved for stage IV cancer but not stage III. Which means, my insurance will not cover it and we will have to pay for it. It is quite expensice but my doctor feels it may have good results. It's used by cutting of the blood supply to the tumor. Since I no longer have a tumor, we are not sure if it will help or not, but I have talk to a few different doctors and they agree with the use. It's been a hard decision but we are going to go for it. The doctors hope is it will give better odds that the cancer will not return at a future date. So Monday I go in for a "teach" class about the drugs. Tuesday I will start my first treatment. Please keep me in your prayers that all goes well.
Hebrews 10:23,24
Let us hold fast the confession of our hope without wavering, for He who promised is faithful: and let us consider how to stimulate one another to love and good deeds.

Sunday, January 07, 2007


Happy New year!! I am feeling really good after a week of recuperation. I'm up to walking again and feeling my energy increase each day thanks to all the wonderful people who have been bringing in great dinners!!! My appetite is back in full force!! The picture is of my very special "healing Hands" blanket from my Foothill Family. It keeps me warm and loved every minute!
The first few days home were a little rough for me having to get used to a new addition to my body...an ileostomy. It's an "off ramp", as Casey calls it, between my small and large intestines. I will have it through chemo and until my colon heals completely. I was supposed to have a home health nurse come three days a week starting right away to help me out, but as I was leaving the hospital, the nurse informed me that they couldn't find anyone to come to my home. To say the least, I was upset, scared, and had a million questions on how to care for this new thing. But once again, God provided. My neighbor came over and offered her help. She is a retired nurse who used to work with patients and ostomys. She even drove me up to John Muir the next day for a visit with the ostomy nurse. I am feeling much more at ease now and am learning to adjust. As for the next round of treatment, I should be starting chemo in about 3 more weeks. I do have a second opinion appointment at UCSF for chemo on the 29th of January. Since there were so many lymph nodes involved, they want to go heavy on the drugs and wipe any hidden cells. I say go for it!. I have always said that God gives you only what you can handle. Now I realize that when there is more than you can handle, He comes along and helps carry part of the load. He also helps you find your way. A dear friend told me that when He brings you to your knees it's only because He wants you to see His path more clearly. I know that as I go through this next phase of treatment, God will be right there with me. I won't be carrying it alone. I pray if one of you go through trials or tribulations, you remember that God is with you and He will help you each and every step if you let Him.
Jeremiah 29:11-12
For I know the plans I have for you, declares the Lord, plans for welfare and not for calamity to give you a future and a hope. Then you will call upon Me and come and pray to Me, and I will listen to you.